CDG Care

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CDG CARE (Community Alliance and Resource Exchange) is a non-profit organization registered as a 501(c)(3), established by parents in search of information and assistance for a set of conditions referred to as Congenital Disorders of Glycosylation (CDG). Our aim is to raise awareness and comprehension of CDG, offer guidance and support to families affected by CDG, and champion and finance scientific research to progress the diagnosis and treatment of CDG. We are committed to fulfilling our mission by providing guidance and support to individuals diagnosed with CDG, their families, and the professionals who assist them.